As caregivers, our journey is a constant learning process. Every day presents new challenges, but with the right resources and support, we can navigate the complexities of caring for our loved ones with dementia. In this post, I want to share some invaluable free resources that have been instrumental in my caregiving journey.
One of the first things I learned is the importance of educating myself about our situation and understanding the intricacies of dementia. The internet is a treasure trove of free resources, ranging from articles and blogs to videos and webinars. Organizations like the Alzheimer's Association offer a wealth of information and support, including free seminars and coaching sessions. For those with Kaiser Permanente as their medical provider, there are additional resources available for medical-related support.
One particular resource that has been immensely helpful is the Careblazers YouTube channel with Natali Edmonds, a board-certified Geropsychologist. Their informative videos and courses provide practical tips and insights into various aspects of caregiving. I enrolled in one of their courses about a year ago, and it has been incredibly beneficial in helping me adapt my approach to different caregiving tasks.
Adapting to the changing needs of our loved ones is crucial, especially when it comes to everyday activities like bathing and feeding. Investing in spill-pro
of dishes and adult sippy cups has made meal times less stressful, and I'm considering purchasing adaptive silverware for added convenience.
But caregiving isn't just about practical solutions—it's also about finding moments of joy and connection amidst the challenges. One tip I discovered is playing music during diaper changes and dressing routines. Not only does it distract and soothe my loved one, but it also brings us closer together through shared moments of laughter and comfort.
As my mom's dementia progresses, communication becomes more challenging, but our bond remains strong. We may struggle to find the right words, but our connection transcends language, grounded in love and understanding.
In conclusion, the journey of caregiving is complex and ever-evolving, but with the abundance of free resources available, we can equip ourselves with the knowledge and support needed to navigate this path with compassion and resilience. Let's continue to learn, adapt, and cherish the moments we share with our loved ones, making each day as meaningful and fulfilling as possible.
Here is a list of resources to get you started on your journey:
1. Alzheimer's Association: A leading organization dedicated to Alzheimer's care, support, and research. They offer a variety of resources, including educational materials, support groups, and a 24/7 helpline.
24/7 Helpline: 800.272.3900
2. National Institute on Aging (NIA): Provides information and resources on Alzheimer's disease and related dementias, including research updates, caregiving tips, and clinical trials information.
3. Family Caregiver Alliance: Offers a wealth of information and support for family caregivers, including resources specific to dementia caregiving, online support groups, and caregiver education programs.
4. The Lewy Body Dementia Association (LBDA): Focuses on providing support and resources for individuals and families affected by Lewy body dementia, including educational materials, support groups, and caregiver resources.
5. Dementia Action Alliance (DAA): Aims to support individuals living with dementia and their families through advocacy, education, and empowerment. They offer resources, educational webinars, and community events.
6. AgingCare.com: A comprehensive online resource for caregivers, offering articles, forums, and expert advice on a wide range of caregiving topics, including Alzheimer's and dementia care.
7. Teepa Snow's Positive Approach to Care (PAC): Provides training and resources for caregivers of individuals with dementia, focusing on practical techniques and strategies for effective communication and care.
8. Dementia Friends USA: A global movement that aims to raise awareness and understanding of dementia. They offer educational materials, training sessions, and community events to help create dementia-friendly communities.
9. Dementia Careblazers-Dementia care support and information: Dementia education and videos with tips and information.
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